The cover's quilt symbolizes
the many facets of the story
softcover, over 200 pages,
17 b&w photos
|"This is a stunning account of a partnership
between a family, a physician and their medical/social communities
in their journey to unravel a genetic mystery and its impact on them
Dale Halsey-Lea, R.N., Senior Genetic Counselor, Foundation for Blood Research, Scarborough, Maine
"...an authentic rendering of the thoughts, emotions and actions of a courageous mother in a crisis..."
Mary Ann McDermont, R.N. Ed.D. Professor, Niehoff School of Nursing, Loyola University of Chicago
|"This book has important messages
on several different levels. For a nonmedical audience, it provides
an extraordinarily detailed and personal account of a teenage girl's
gradual, and unfortunately, still incomplete, recovery from a severe
brain injury. For physicians it shows a side of rehabilitation that
is hidden form them - what happens when the respirator, intravenous tubing,
and even the wheelchair are no longer needed and a patient returns to
family and friends with neurological problems that just don't disappear.
For all of us, it reinforces the vulnerability of our most human traits
to a single mutation in the genetic code."
Steven Rothman, M.D.,
Stein Professor of Developmental Neurology, Washington University;
Neurologist-in-Chief, St. Louis Children's Hospital
In "Kara Mia Online" a fully revised and updated edition is now available. This eBook is published as Adobe PDF files with the look of the original book. It can be donwloaded at no charge. We ask that you make a donation to the SADS Foundation if Kara Mia inspires you. Follow the link below for details.
In "About long QT syndrome" read the latest facts about long QT - with links to Dr. Allan's papers about the difficulties of making the diagnosis despite the DNA discoveries.
In "About the authors" read how Maryann came to write her book.
About long QT
Kara Mia Online